Hearing (Our) Voices: Involving Service Users in Mental Health Research
Hearing (Our) Voices describes two innovative participatory action research projects - one on communication with medical professionals, the other on housing - carried out by a group of people diagnosed with schizophrenia under the guidance of Professor Barbara Schneider. Participants designed the research, conducted interviews and focus groups, participated in data analysis, and disseminated research results through a number of innovative strategies including theatre performances, a documentary film, a graphic novel, and a travelling exhibit.
Emerging from these projects is the central and significant finding that people diagnosed with schizophrenia are caught between their dependence on care and their longing for independent lives. The research presented in Hearing (Our) Voices points to a way to resolve this paradox and transform lives through the inclusion of people diagnosed with schizophrenia in research, in decision-making about their own treatment and housing, and in public discourse about schizophrenia.
- World Rights
- Page Count: 196 pages
- Dimensions: 6.0in x 0.5in x 9.0in
Reviews'Hearing (Our) Voices will help change public perceptions of schizophrenia. Using the voices and perspectives of those diagnosed with the illness, this moving work provides concrete suggestions for change and highlights the great potential of individuals for improving their quality of life and care.'
Miya Narushima, Department of Community Health Sciences, Brock University
Author InformationBarbara Schneider is an associate professor in the Communication Studies Program at the University of Calgary.
Table of contents
2 What We Did (Method)
3 What We Learned: Communication between People Diagnosed with Schizophrenia and Their Medical Professionals (Results)
4 What We Learned: Housing for People Diagnosed with Schizophrenia (Results)
5 Our Photovoice Project: Searching for Sanctuary: What Home
Means to Me
6 Taking Action: Spreading the Word (Dissemination)
7 Where We Got To (Conclusion)
Appendix A: Interview Questions
Appendix B: Calgary Herald Articles about the Project
Appendix C: Script of a Readers' Theatre Presentation
Subjects and Courses